Data Privacy Frontline Reports

Data Privacy Frontline Report

Global news from the frontlines of data privacy

Stay up to date on global news and regulatory changes, including legislative predictions, interactive tools, and cutting-edge research and implementation.

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October 2024

  • UK: The UK government has unveiled its Data Use and Access Bill in its latest effort to modernize the UK General Data Protection Regulation.
  • US: A Texas lawmaker has released a draft of an “innovation-friendly” comprehensive AI regulation bill, which could become a model for other US states.
  • EU: The European Data Protection Board (EDPB) has adopted guidelines on the processing of personal data based on legitimate interest, including a 3-question test to determine when you can invoke legitimate interest.

September 2024

  • APAC: The Australian government has introduced much-anticipated reforms to its Privacy Act of 1988, including new enforcement powers and transparency requirements around automated decisions.
  • US: Texas’ attorney general has reached a settlement in an investigation into an AI healthcare tech company, addressing allegations of false and misleading statements about product accuracy and safety.
  • Global: The United Nations has adopted a Pact for the Future, including a comprehensive global framework for digital cooperation and AI governance.

August 2024

  • US: The California legislature has passed a controversial AI safety bill requiring companies that make advanced AI models to test for potential harm to society and be capable of shutting a model down.
  • EU: The European Commission has stated its intent to prioritize GDPR enforcement, with no plans to reopen the GDPR for amendment before 2028.
  • LATAM: Chile has approved the Personal Data Protection Law, updating its current legislation and aligning it with GDPR standards.

July 2024

  • EU AI Act published in the Official Journal of the European Union, with the Act officially entering into force on August 1, 2024
  • OECD announces a pilot phase to monitor application of the G7 code of conduct on advanced AI development, seeking to establish a monitoring mechanism for the code
  • US multinational Meta to pay $1.4 billion to resolve the Texas lawsuit alleging Meta illegally used facial-recognition technology to collect biometric data without consent

June 2024

  • US: A federal judge in Texas has ruled that guidance issued in 2022 barring hospitals and other medical providers from using online tracking technologies is unlawful.
  • APAC: Hong Kong’s Privacy Commissioner has released a framework for personal data protection for AI, suggesting companies establish AI governance committees.
  • Global: Regulators in France and California have signed a declaration of cooperation, allowing collaborative efforts to safeguard personal information and advance privacy.

May 2024

  • US: Colorado has passed a landmark AI bill, becoming the first US state to enact comprehensive AI legislation and creating a model for other states.
  • EU: The Council of Europe has adopted the first international treaty on AI, setting out a legal framework covering the AI lifecycle while promoting responsible innovation.
  • Africa: Nigeria’s DPC has issued guidance on the registration of data controllers and data processors of major importance, with entities expected to register by June 2024.

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Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

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Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

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Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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