Data Privacy Frontline Reports

Data Privacy Frontline Report

Global news from the frontlines of data privacy

Stay up to date on global news and regulatory changes, including legislative predictions, interactive tools, and cutting-edge research and implementation.

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  • EU: The European Commission has proposed a European Health Data Space to improve access to data for research and “fully unleash the benefits of the secondary use of electronic health data.”
  • India: Lawmakers have reportedly scrapped the draft Personal Data Protection Bill, which will be reformulated from scratch, along with a replacement for the dated Information Technology Act.
  • Canada: A House of Commons committee is calling for de-identified information and aggregate data to be deemed personal information and therefore subject to privacy protections.

And more…

  • US: The Department of Commerce has announced an historic multilateral forum for cross-border privacy rules, including Canada, Japan, the Republic of Korea, the Philippines, Singapore, and Chinese Taipei. An important step forward for the international flow of privacy-protected data.
  • EU: Two European Parliament co-rapporteurs have finalized the AI draft report, providing better clarity on the division of responsibilities between providers and users but delaying addressing the most controversial issues.
  • US: Connecticut’s Data Privacy Act earns final passage in the House of Representatives, putting it on track to become the fifth US state to have its own privacy rules.

And more…

  • EU & US: Both regions have agreed ‘in principle’ to a new trans-Atlantic data agreement, hoping to “promote growth and innovation in Europe and in the United States and help companies, both small and large, compete in the digital economy.”
  • US: Utah has just become the fourth state to have its own privacy rules, enacting comprehensive consumer privacy legislation, which will take effect on Dec 31, 2023.
  • EU: A revealed draft proposal for the European Health Data Space Regulation lays out rules for processing health data in both primary and secondary uses (such as “research, innovation, policymaking, statistics,” and more).

And more…

  • China: The Cyberspace Administration of China drafted regulations, which came into effect Mar 1, 2022, outlawing “algorithmic discrimination as part of what may be the world’s most ambitious effort to regulate AI.

  • Africa and the Near East: The region’s privacy landscape is facing rapid and dramatic changes, following an “explosive growth of data privacy rules in 2021, with the enactment and/or entry into force of eight new data privacy laws.” 

  • US: Two Senators (LA and WI) introduce the bipartisan Health Data Use and Privacy Commission Act to start modernizing health data use and privacy policies, with Teladoc Health, IBM, Epic, and athenahealth all signed on in support.

And more…

  • US: Several states may be bringing forward new CCPA-like consumer privacy bills in 2022, including AZ, CT, FL, MN, MS, WA, with others carrying bills over from 2021, including AK, MA, NY, NC, OH, OK, SC, VT.

  • EU: Austrian data watchdog rules German company’s use of Google Analytics breached GDPR by sending data to the US, with potentially far-reaching implications about the legality of data transfers from the EU to the US.

  • ANZ: Australia’s privacy regulator welcomes proposals to strengthen privacy protections, stating that the shift to a digital economy ‘requires an upgraded privacy framework that reinforces trust and security in the digital world.’

And more…

Not finding what you're looking for?

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

OUR SOLUTION

Value Retention

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

OUR SOLUTION

Unbiased Results

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

OUR SOLUTION

Usable and Reusable Data

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

OUR SOLUTION

Security / compliance efficiency

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

OUR SOLUTIONS

Consent / Contracting strategy

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

OUR SOLUTION

Build privacy in by design

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

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