Data Privacy Frontline Reports

Data Privacy Frontline Report

Global news from the frontlines of data privacy

Stay up to date on global news and regulatory changes, including legislative predictions, interactive tools, and cutting-edge research and implementation.

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  • US: Congress members have released the American Privacy Rights Act (APRA), a draft bi-partisan federal privacy bill with the stated purpose of establishing “a uniform national data privacy and data security standard.”
  • EU: France’s National Commission on Informatics and Liberty (CNIL) has released its first recommendations on the development of AI systems, with supplements planned for the coming months.
  • US: The Federal Communications Commission (FCC) has fined wireless carriers $200 million for illegally sharing access to customer location data without consent.
  • EU: The European Parliament has approved the EU AI Act—a landmark in the development of AI regulation—which might enter into force as soon as May.
  • US: New Hampshire has signed a comprehensive consumer privacy bill into law, effective January 1, 2025, becoming the 14th US state to do so.
  • EU: The Council of the EU and the European Parliament have reached a provisional agreement on a proposed regulation for a European Health Data Space, which would make it easier to exchange and access health data within the EU.
  • EU: The European Commission will soon launch the European AI Office to support the development and use of safe AI and help implement the AI Act.
  • APAC: India’s government is working on a draft AI law, due in June-July, aimed at promoting economic growth while addressing potential risks of AI.
  • US: The Department of Health and Human Services (HHS OCR) has announced a new round of HIPAA audits for healthcare organizations, the first since 2017.
  • EU: The European Commission has reviewed and upheld 11 of 16 existing data protection adequacy decisions, including those with Argentina, Canada, Israel, New Zealand, Switzerland, Uruguay, and others.
  • US: The governor of New Jersey has signed a comprehensive privacy bill into law, helping to protect consumer privacy. It will take effect in January 2025.
  • Global: A global alliance of companies, including IBM, Pfizer and Nielsen, have released a proposed set of data provenance standards to enhance the trustworthiness of AI training data.
  • EU: The European Union has reached an agreement on the Artificial Intelligence Act, which the European Commission president says will make “…a substantial contribution to the development of global rules and principles for human-centric AI.”
  • LAC: Latin American and Caribbean authorities have produced the Santiago Declaration and proposed establishing an intergovernmental AI Council to promote AI ethics in the region.
  • Canada: Quebec’s draft regulation for the anonymization of personal information is now published in the government’s official gazette and has begun its 45-day consultation period.
  • US: The California Privacy Protection Agency (CPPA) has released a first draft of its rulemaking on automated decision-making technologies, paving the way for “the most comprehensive and detailed set of rules in the ‘AI space.’”
  • Europe: The EU Parliament has overwhelmingly voted to formally adopt its Data Act, which aims to support the emergence of a single European market for data.
  • Asia: South Korea’s Personal Information Protection Committee (PIPC) has announced several proposed changes to the Personal Information Protection Act (PIPA), including establishing data rights for people subjected to automated decisions.

Not finding what you're looking for?

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

OUR SOLUTION

Value Retention

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

OUR SOLUTION

Unbiased Results

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

OUR SOLUTION

Usable and Reusable Data

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

OUR SOLUTION

Security / compliance efficiency

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

OUR SOLUTIONS

Consent / Contracting strategy

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

OUR SOLUTION

Build privacy in by design

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

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