May 2025

Data Privacy Frontline Report

May 2025

Here are key highlights from May 2025 detailing global news and regulatory updates.

US & Canada

  • US House of Representatives narrowly passes a bill banning US states for 10 years from enacting and enforcing AI regulations, with the bill now advancing to the Senate.
  • US Consumer Financial Protection Bureau (CFPB) rescinds a proposed rule aimed at preventing data brokers from selling or misusing the sensitive personal data of consumers.
  • US Federal Trade Commission (FTC) finalizes order with webhoster over failing to implement data security protections that led to data breaches.
  • US Office for Civil Rights (OCR) announces settlement with Florida healthcare provider, resolving an investigation into a complaint concerning impermissible access to electronic protected health information (ePHI).

EMEA

  • Denmark’s data protection authority updates the remaining parts of its guidance on handling personal data breaches (in Danish).
  • EU and Singapore sign the landmark Digital Trade Agreement to enhance consumer protection and facilitate trusted cross-border data flows (also in APAC).
  • EU European Commission introduces a proposal to simplify the GDPR, seeking to ease compliance for businesses—particularly small and mid-sized enterprises—by extending certain exemptions and clarifying record-keeping requirements.
  • EU European Commission seeks views on the use of data to develop AI, the simplification of data rules, and international data flows, with consultation open until July 18, 2025.
  • EU European Data Protection Board (EDPB) issues an opinion recognizing the need for an extension to the UK’s data protection adequacy decisions under the GDPR and the Law Enforcement Directive (LED) until December 27, 2025.
  • EU commissioner seeks to introduce a digital fairness act to clarify the rules for the use of AI solutions in business and consumer contexts.
  • Finland’s data protection authority publishes guidelines for addressing data protection in the development and use of AI systems (in Finnish).
  • Kenya’s data protection authority publishes guidelines to help entities to comply with the Data Protection Act, 2019.
  • Nigerian and Somalian data protection authorities sign a memorandum of understanding to establish a framework for collaboration on data protection between the two nations.

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APAC

  • China bolsters AI governance measures, launching a three-month campaign in May to regulate AI technology abuse.
  • Japan enacts bill to promote development of AI while seeking to mitigate its risks.
  • Singapore and EU sign the landmark Digital Trade Agreement to enhance consumer protection and facilitate trusted cross-border data flows (also in EMEA).
  • Singapore Conference on AI publishes consensus on global AI safety research priorities.

LATAM

  • Argentina introduces bill to amend data protection law, aiming to align with international standards and define key terms.

Global

  • Global agencies—including agencies from the US, Australia, New Zealand, and the UK—produce joint report on best practices for the secure use of data when training and operating AI systems.
  • Global Cross-Border Privacy Rules (CBPR) Forum launches international data protection and privacy certifications, providing a means for organizations to foster trust in cross-border data flows.
  • ISO/IEC release new AI impact assessment standard (42005), with a focus on understanding how AI systems may affect individuals, groups, or society as a whole.

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

OUR SOLUTION

Value Retention

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

OUR SOLUTION

Unbiased Results

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

OUR SOLUTION

Usable and Reusable Data

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

OUR SOLUTION

Security / compliance efficiency

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

OUR SOLUTIONS

Consent / Contracting strategy

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

OUR SOLUTION

Build privacy in by design

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

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