December 2024

Data Privacy Frontline Report

December 2024

Here are key highlights from December 2024 detailing global news and regulatory updates.

US & Canada

  • Michigan Senate passes bill to establish personal data privacy act, now to be considered by the House of Representatives
  • US company GoodRx settles $25 million class action lawsuit for wrongly sharing consumer health information with online platforms
  • US Federal Trade Commission (FTC) publishes blog on measures for addressing digital security risks when using consumer data to develop products, including AI
  • US Department of Health and Human Services (HHS) proposes updates to the Security Rule under the Health Insurance Portability and Accountability Act (HIPAA), changes that could have “significant consequences” for organizations covered by HIPAA
  • Utah becomes first US state to sign a regulatory AI agreement that outlines how an organization can use AI within the state

EMEA

  • EU’s European Data Protection Board (EDPB) releases opinion on the use of personal data in AI model development, including a discussion of when AI models can be considered anonymous
  • EU’s EDPB clarifies rules on sharing data with third-country authorities
  • EU’s EDPB calls for coherence of digital legislation such as the AI Act with the GDPR, emphasizing the value of legal certainty
  • Monaco adopts personal data protection law to conform to the most rigorous European standards
  • UK’s Information Commissioner’s Office (ICO) solicits input on updated storage and access technologies guidance, formerly known as “detailed cookies guidance”

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APAC

  • China to set up an AI technical committee to develop industry standards, attempting a balance between regulating the AI industry and fostering its growth
  • New Zealand’s Privacy Commissioner releases the draft Biometrics Processing Privacy Code, which would establish additional privacy rules for agencies using biometric technologies and processing biometric information
  • South Korea’s National Assembly passes comprehensive AI legislation, consolidating 19 proposals from various political parties and mirroring key themes in the EU AI Act

LATAM

  • Mexico’s government votes to dissolve country’s data protection authority, with a new authority to take its place that may have less independence

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

OUR SOLUTION

Value Retention

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

OUR SOLUTION

Unbiased Results

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

OUR SOLUTION

Usable and Reusable Data

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

OUR SOLUTION

Security / compliance efficiency

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

OUR SOLUTIONS

Consent / Contracting strategy

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

OUR SOLUTION

Build privacy in by design

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

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