October 2023

Data Privacy Frontline Report

October 2023

Here are key highlights from October 2023 detailing global news and regulatory updates.

US & Canada

  • Canada’s Minister of Innovation, Science and Industry submits a list of recommended amendments to draft Bill C-27, including stronger language in the bill to recognize the fundamental right to privacy of Canadians
  • Quebec’s Access to Information Commission’s recent position on anonymization discussed, with the Commission expressing reservations about anonymization
  • US Internet privacy litigation continues to create uncertainty for websites using third-party technology while expanding to more states
  • US American Hospital Association (AHA) responds to a Senate RFI on data privacy, claiming that new rules on online tracking technologies are “flawed” and “harmful”
  • US White House issues an executive order on the safe, secure, and trustworthy development and use of AI, claiming that Americans’ privacy and civil liberties must be protected as AI continues advancing

EMEA

  • EU European Medicines Agency (EMA) relaunches Policy 0070 on publication of clinical data for medicinal products for human use, after the policy was suspended since 2018
  • EU and Japan conclude landmark deal on cross-border data flows that is consistent with the EU digital agenda and privacy rules (story also in APAC)
  • France’s National Commission on Informatics and Liberty (CNIL) provides an initial response on AI, showing that the General Data Protection Regulation (GDPR) supports an innovative and responsible approach (article in French)
  • German government publishes a bill for a new Health Data Use Act (GDNG) that would enable R&D and AI with health data under certain conditions
  • Italian Privacy Authority decision on anonymization by the Health Improvement Network (THIN) examined
  • Saudi Arabia’s new data protection law discussed, with details on regulations dealing with anonymization. See also more analysis of the law, including discussion of personal data cross-border transfer
  • UK and 27 countries from around the globe reach a “world-first agreement” with the Bletchley Declaration on Artificial Intelligence Safety as part of the UK’s AI Safety Summit (story also in Global)

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APAC

  • China launches AI framework, urging equal rights and opportunities for all nations when developing AI
  • Japan and EU conclude landmark deal on cross-border data flows that is consistent with the EU digital agenda and privacy rules (story also in EMEA)
  • South Korea’s Personal Information Protection Commission (PIPC) launches AI privacy unit, focusing on “principles to be followed in an artificial intelligence environment”

LATAM

  • Argentina’s Draft Law on the Protection of Personal data examined, with provisions to enter into force 180 days after publication in the Official Gazette
  • Brazil’s National Data Protection Authority (ANPD) sanctions a public body for not maintaining secure systems for storing and processing personal data of millions of public servants in the state of São Paulo (article in Portuguese)

Global

  • 28 countries from around the globe reach a “world-first agreement” with the Bletchley Declaration on Artificial Intelligence Safety as part of the UK’s AI Safety Summit (story also in EMEA)

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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