November 2023

Data Privacy Frontline Report

November 2023

Here are key highlights from November 2023 detailing global news and regulatory updates.

US & Canada

  • California Privacy Protection Agency (CPPA) provides first draft of rulemaking on automated decision-making technologies, preparing the path for state-level artificial intelligence laws
  • California CPPA Board releases a revised draft of the agency’s California Privacy Rights Act (CPRA) regulations for cybersecurity audits to be discussed at its December 8 open meeting
  • Colorado Attorney General publishes a shortlist identifying three potential mechanisms for consumers to opt out of the processing of their personal data
  • US Federal Trade Commission alleges that location data sold by Kochava, a mobile app analytics firm, is “not anonymized”

EMEA

  • Danish Data Protection Authority (Datatilsynet) publishes catalogue of security measures to be implemented in different scenarios (in Danish)
  • EU Parliament formally adopts the Data Act, which aims to support the emergence of a single European market for data
  • EU Parliament committees adopt a common position on the European Health Data Space, taking a step towards personal health data portability and more secure sharing
  • EU agrees to create a digital identification wallet, which will allow EU citizens to access public and private online services all over Europe “in full security and protection of personal data”
  • Italy’s data protection authority to investigate how personal data is collected online to train algorithms, with the aim of preventing the “massive collection” of personal data (in Italian)
  • UK GDPR-reform bill to proceed in UK Parliament, with 120 pages of amendments to the bill tabled
  • UK residents’ health data donated for medical research was allegedly shared with insurance companies, despite pledge this would not happen

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APAC

  • Queensland Parliament passes the Information Privacy and Other Legislation Amendment Act 2023, subjecting government agencies to new requirements for managing personal information
  • South Korea’s Personal Information Protection Committee (PIPC) announces several proposed changes to the Personal Information Protection Act (PIPA), including establishing data rights for people subjected to automated decisions
  • Thailand’s Personal Data Protection Committee (PDPC) releases draft regulations on international data transfers for public consultation

LATAM

  • Uruguay’s Regulatory and Control Unit of Personal Data recognizes data protection adequacy with South Korea and organizations participating in the EU-U.S. Data Privacy Framework

Global

  • Organisation for Economic Co-operation and Development (OECD) updates its definition of artificial intelligence, which is likely to be incorporated into the EU’s upcoming AI regulation

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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