May 2022

Data Privacy Frontline Report

May 2022

Here are key highlights from May 2022 detailing global news and regulatory updates.

US & Canada

  • Canada’s Privacy Commissioner to leave his post June 3, urging federal privacy reform that is consistent with existing international laws
  • Canada’s Office of the Privacy Commissioner issues a bulletin on sensitive personal information
  • Canadian privacy commissioners – including the federal commissioner and those from Alberta, British Columbia, and Quebec – sign MOU to promote greater collaboration
  • Canadian House of Commons committee calls for de-identified information and aggregate data to be deemed personal information and subject to privacy protections
  • Connecticut enacts comprehensive consumer data privacy law
  • Ontario’s Privacy Commissioner discusses legal and ethical issues around de-identified data
  • US state privacy laws in Connecticut and Virginia exempt broad categories of data from cybersecurity requirements
  • US House of Representatives approves bill for National Science Foundation to support research on privacy enhancing technologies
  • US state law definitions of pseudonymization contrasted and compared
  • US Electronic Health Record Association supports the Expert Determination method as acceptable for de-identifying genomic data

EMEA

  • Austrian data protection authority rejects risk-based approach for data transfers to third countries
  • EU Council and the European Parliament agree on measures for a high common level of cybersecurity across the Union
  • EU’s European Council approves the Data Governance Act
  • EU’s GDPR fining policies explored in Future of Privacy Forum article, showing that policies and practices vary considerably
  • EU’s European Commission proposes a European Health Data Space to “fully unleash the benefits of the secondary use of electronic health data”
  • EU-funded institution issues report with recommendations to advance sustainable data portals
  • Ireland’s Department of Social Protection being examined for gathering excessive location data
  • Swiss Personalized Health Network issues guidance on health-related data de-identification in compliance with Swiss legislation
  • UK to reform data protection, throwing EU adequacy ruling into doubt

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APAC

  • India’s draft Personal Data Protection Bill reportedly scrapped and to be reformulated from scratch, along with a new law to replace the Information Technology Act
  • India’s Ministry of Electronics and Information Technology releases a revised Draft National Data Governance Framework, looking to unlock the value of anonymized government data sets
  • Sri Lanka’s Personal Data Protection Act as it relates to data breaches

LATAM

  • Brazil’s data protection authority seeks comment on regulation of international personal data transfers
  • Latin America and the impact of the GDPR explored in a detailed comparative law study

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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