July 2024

Data Privacy Frontline Report

July 2024

Here are key highlights from July 2024 detailing global news and regulatory updates.

US & Canada

  • New York State attorney general publishes privacy guide on website tracking technologies to help businesses comply with consumer protection laws
  • US National Institute of Standards and Technology (NIST) releases new guidance and software to help improve the safety, security, and trustworthiness of artificial intelligence (AI) systems
  • US multinational Meta to pay $1.4 billion to resolve the Texas lawsuit alleging Meta illegally used facial-recognition technology to collect biometric data without consent
  • US and Nigeria enter a memorandum of understanding to facilitate data flows between the two countries and to align on AI (also in EMEA)
  • Washington DC attorney general introduces legislation to protect personal health data of District consumers, addressing entities that fall outside of HIPAA

EMEA

  • EU AI Act published in the Official Journal of the European Union, with the Act entering into force on August 1, 2024
  • EU European Commission promotes the AI Pact, seeking voluntary commitment from industry to implement requirements of the AI Act ahead of legal deadlines
  • Hamburg’s data protection authority publishes a paper on the relationship between the GDPR and large language models (LLMs), addressing whether LLMs store personal data (article in German)
  • Israel’s privacy protection authority issues a draft opinion interpreting the provisions of the nation’s privacy rules addressing the transfer of personal data outside Israel
  • Nigeria and US enter a memorandum of understanding to facilitate data flows between the two countries and to align on AI (also in US & Canada)
  • Saudi Arabia releases draft rules on the appointment of a personal data protection officer (DPO), aiming to clarify when a DPO must be appointed.

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APAC

  • China’s new guidelines for exporting “important data” explored
  • Japan’s data protection authority publishes an interim summary of amendments to its privacy regulations, including new regulations on biometric data and strengthened enforcement
  • Malaysia’s Cabinet approves proposed amendments to the Personal Data Protection Act 2010, including rights to data portability and rules for data transfers outside the country
  • South Korea’s data protection authority announces a plan to safely anonymize medical data held by domestic hospitals to be used for international joint research (details forthcoming)

LATAM

  • Brazil’s data protection authority publishes regulation clarifying the role of DPOs in organizations subject to the country’s General Data Protection Law (LGPD)

Global

  • OECD announces a pilot phase to monitor application of the G7 code of conduct on advanced AI development, seeking to establish a monitoring mechanism for the code

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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