June 2024

Data Privacy Frontline Report

June 2024

Here are key highlights from June 2024 detailing global news and regulatory updates.

US & Canada

  • California’s and France’s regulators sign a declaration of cooperation to safeguard personal information and advance privacy (also in EMEA)
  • Canada’s parliament may not pass Bill C-27—its updated omnibus privacy law—before the next election in 2025
  • Canadian government tables bill requiring the interoperability of health information, seeking to increase patient and healthcare provider ability to securely access data
  • Colorado’s and Minnesota’s recent proposed legislation for protecting neural data examined
  • Rhode Island becomes the 19th US state to enact a comprehensive privacy law, which is to take effect on January 1, 2026
  • Texas federal judge rules guidance barring hospitals and other medical providers from using online tracking technologies as unlawful
  • US Federal Trade Commission’s (FTC) approach to consumer protection discussed: Companies need to understand the potential impact of their AI models
  • US National Science Foundation (NSF) launches a new investment to advance privacy-enhancing technologies (PETs) and promote their use, aligning with White House’s recent executive order on AI
  • Vermont’s governor vetoes the state privacy bill containing a private right of action, fearing it would make the state a “national outlier”

EMEA

  • EU’s European Data Protection Supervisor (EDPS) publishes guidelines on GenAI and personal data for EU institutions, bodies, offices and agencies (EUIs), aiming to help EUIs to comply with data protection regulations when using or developing GenAI tools
  • France’s Commission nationale de l’informatique et des libertés (CNIL) publishes its first recommendations on the development of AI systems, striving to help professionals reconcile innovation and respect for people’s rights
  • France’s and California’s regulators sign a declaration of cooperation to safeguard personal information and advance privacy (also in US & Canada)
  • Italy’s data protection authority (Garante) initiates sanctioning procedures against 18 regions and two provinces for alleged data protection violations (article in Italian)
  • Irish data protection authorities request leads Meta to pause launch of AI tools in Europe

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APAC

  • Hong Kong’s Office of the Privacy Commissioner for Personal Data (PCPD) releases a framework for personal data protection for AI, suggesting companies establish an AI governance committee
  • India’s government in the advanced stages of drafting rules to implement the Digital Personal Data Protection Act (DPDPA)
  • Thailand’s Personal Data Protection Committee (PDPC) releases a draft notification for the deletion, destruction, and de-identification of personal data

LATAM

  • Chile’s draft AI bill is described, addressing several elements of the recent EU AI Act (article in Spanish)

Global

  • OECD report explores important policy considerations for AI, data governance, and privacy, highlighting the need for global coordination to address AI-related challenges

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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