July 2022

Data Privacy Frontline Report

July 2022

Here are key highlights from July 2022 detailing global news and regulatory updates.

US & Canada

  • Canada’s draft privacy Bill C-27, with analysis by legal expert Teresa Scassa on the bill’s definitions of anonymization and de-identification
  • Canada and the UK take a new direction with their data protection legislation, claims the Executive Director of the Information Accountability Foundation (story also under EMEA)
  • Canada’s proposed Artificial Intelligence and Data Act will likely lead to a new market for AI assurance
  • US Federal Trade Commission (FTC) to crack down on sites that falsely claim data is anonymized and is prepared to sue offenders
  • US senators call for HIPAA to be updated to better protect the information of patients seeking reproductive healthcare
  • US ADPPA (American Data Privacy and Protection Act) bill will be voted on by the House of Representatives, a first for a comprehensive privacy bill
  • US needs an AI Bill of Rights now, claim policy experts

EMEA

  • EU regulators (EDPB and EDPS) and trade association (DIGITALEUROPE) react to the proposed European Health Data Space
  • EU’s European Commission tells Dutch privacy watchdog that their recent interpretation of the GDPR is too strict, failing to strike a balance between data protection and freedom of undertaking
  • EU and Chinese standard contractual clauses for cross-border transfers compared (story also under APAC)
  • EU’s Data Governance Act in a one-page overview from the IAPP
  • Mauritius’ Data Protection Act 2017 and its impact on clinical trials in that country
  • Nigeria’s data protection bill scheduled to be passed by end of 2022, according to the country’s data security officer
  • UK government unveils data reform bill and proposes AI regulations (including a comparison of the UK bill with European law)
  • UK signs ‘in principle’ data adequacy agreement with South Korea (story also under APAC)
  • UK and Canada take a new direction with their data protection legislation, claims the Executive Director of the Information Accountability Foundation (story also under US & Canada)

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APAC

  • Asian data protection legislation since the start of 2021: A summary of updates for Hong Kong, Singapore, Japan, Taiwan, and Mainland China
  • Chinese and EU standard contractual clauses for cross-border transfers compared (story also under EMEA)
  • Indonesian Personal Data Protection Bill targeted to be ratified in August, says member of House of representatives
  • South Korea signs ‘in principle’ data adequacy agreement with the UK (story also under EMEA)

LATAM

  • No news from July 2022

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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