August 2022

Data Privacy Frontline Report

August 2022

Here are key highlights from August 2022 detailing global news and regulatory updates.

US & Canada

  • US Federal Trade Commission launches lawsuit against company for selling location data from mobile devices and is exploring rules to “crack down on lax data security”
  • US Federal Trade Commissioner Alvaro Bedoya, in his first public speech, addresses need for more control over geolocation data
  • US laws need a new approach to handling location data if benefits from this data are still to be enjoyed by society
  • US government agency NIST assembles working groups to update its privacy framework

EMEA

  • Czech Republic establishes new national cyber security certification body
  • EU’s top court hands down broad interpretation of sensitive data processing, providing a “rock-solid statement” that inferred data are personal data
  • EU AI Act conformity assessments explained by Future of Privacy Forum policy counsel and compared with GDPR data privacy impact assessments (DPIAs)
  • EU may be moving towards data localization policies, argues journalist Luca Bertuzzi
  • Jordan creates national ethics charter for AI
  • Romanian Justice Ministry anonymizes a list of NGO founders and leaders, claiming this is required by the GDPR, but experts argue these names are of public interest and should not be anonymized
  • Russian agency Rozkomnadzor on recent changes to the law on personal data, including breach notification requirements
  • Switzerland’s revised data protection act to take effect September 1, 2023, along with updated Data Protection Ordinances and Data Protection Certifications
  • Turkey’s Personal Data Protection Authority produces draft guidelines on processing of genetic data
  • UK’s recent legal and regulatory developments impacting the anonymization of health data, as discussed by lawyers from Fieldfisher

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APAC

  • China’s Cyberspace Administration issues fine to company equivalent to 1.2 billion USD for failing to adequately protect personal data
  • China’s cross-border transfer mechanisms discussed in light of recent government releases
  • Indian government withdraws personal data protection bill, claiming that it will continue working on the legal framework for a new bill
  • Indonesian government actors agree on creation of an agency to oversee the upcoming Law on the Protection of Personal Data (plus update on the law’s progress)
  • Vietnamese government issues decree on data localization, with changes to become fully effective on October 1, 2022.

LATAM

  • Argentina to hold consultation on amendments to its Personal Data Protection Act, seeking to create harmonization with regional and international standards
  • Brazil’s data protection authority seeking feedback on guidelines for processing high-risk personal data
  • Paraguayan Chamber of Deputies to process a personal data protection bill, the country’s first comprehensive privacy legislation
  • Uruguay considering amendments to its data protection law

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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