November 2024

Data Privacy Frontline Report

November 2024

Here are key highlights from November 2024 detailing global news and regulatory updates.

US & Canada

  • Canada and Brazil sign an MoU to promote cooperation and collaborative support in the field of personal data protection (in Portuguese, also in LATAM)
  • Ontario’s law commission and human rights commission produce the first AI human rights impact assessment based on Canadian law
  • US Federal Trade Commission (FTC) urged by House Republicans to halt “partisan or controversial” enforcement activities until the new year
  • US FTC publishes blog on the privacy risks of data clean rooms, noting that they do not change a company’s data safety and disclosure obligations to consumers
  • US Office for Civil Rights (OCR) should enhance its HIPAA audit program, according to report by Department of Health and Human Services inspector general
  • US National Institute for Science and Technology (NIST) produces a report on reducing the risks of synthetic content and on technical approaches to digital content transparency

EMEA

  • African data protection authority positions on AI regulation explored
  • EU draft General-Purpose AI Code of Practice released to guide the development and deployment of general purpose AI models
  • EU GDPR legitimate interest examined as a lawful basis for AI training
  • Israel’s data protection authority announces opinion on the transfer of data outside of the country (in Hebrew)
  • UK Information Commissioner’s Office (ICO) publishes report on privacy concerns related to genomic technology, highlighting the need for a privacy-by-design approach
  • UK Department for Science, Innovation and Technology (DSIT) releases tool to assess costs and benefits of privacy enhancing technologies (PETs)

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APAC

  • Australia’s information commissioner’s office puts out guidance for private sector organizations on the use of third-party tracking pixels on websites
  • China’s foreign minister states that the Global Cross-Border Data Flow Cooperation Initiative demonstrates China’s readiness to deepen cooperation with other parties on international data transfers
  • New Zealand’s deputy privacy commissioner responds to sharing of identifiable personal information by the country’s Inland Revenue agency

LATAM

  • Brazil and Canada sign an MoU to promote cooperation and collaborative support in the field of personal data protection (in Portuguese, also in US & Canada)
  • Salvadoran government approves new regulations to protect the personal data of its citizens (in Spanish)

Global

  • OECD (Organization for Economic Co-operation and Development) issues report on prospective AI benefits, risks, and policy imperatives

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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