March 2023

Data Privacy Frontline Report

March 2023

Here are key highlights from March 2023 detailing global news and regulatory updates.

US & Canada

  • California Privacy Protection Agency announces finalization of new rules and obligations under the California Consumer Privacy Act (CPRA)
  • Iowa becomes sixth US state to enact comprehensive consumer privacy legislation
  • US Federal Trade Commission requires online counselling service BetterHelp to pay $7.8 million to consumers to settle charges that it revealed consumers’ sensitive data with third parties
  • US Chamber of Commerce releases its Artificial Intelligence Commission Report, highlighting opportunities while calling for a risk-based regulatory approach
  • US-EU data transfers for medical research discussed in a Lancet article and a very narrow GDPR derogation for such transfers is examined (also in EMEA)
  • Virginia enacts genetic privacy law to regulate direct-to-consumer genetic testing companies

EMEA

  • African Union’s Data Policy Framework discussed in this article from the Future of Privacy Forum
  • Catalonia DPA releases privacy by design guide
  • EU-US data transfers for medical research discussed in a Lancet article and a very narrow GDPR derogation for such transfers is examined (also in US & Canada)
  • France ratifies Council of Europe Convention 108+, making it the 22nd country to approve this international instrument for the protection of personal data
  • Nigerian privacy context discussed in this IAPP event recording
  • Spain’s data protection supervisor publishes guidelines for public entities on managing data breach risks
  • UK introduces draft reform of its General Data Protection Regulation with the aim of releasing British businesses from “unnecessary red tape”

Gain confidence to use and share sensitive data

Find out how our advisory services can help you safely leverage data derived from information about people. Watch this 15-minute webinar.

Watch On-Demand Now

APAC

  • China to create new top regulator for data governance, streamlining the regulatory structure and bringing all data-related issues under a single agency
  • Hong Kong’s regulator publishes guidance on data security measures
  • Japan to enact on June 16 the amended Telecommunications Business Act
  • India’s Digital Personal Data Protection Bill (DPDPB) to be tabled in parliament in the Monsoon session (July to September)

LATAM

  • Peru’s national data protection authority reviewing the Personal Data Protection Law to propose updates

Global

  • ISO standard for anonymization recently released and will play an important role in establishing best practices for the reuse and sharing of data about people
  • OECD publishes report on privacy-enhancing technologies to help privacy enforcement authorities and policy makers better understand how these technologies can be used

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

Join the next 5 Safes Data Privacy webinar

This course runs on the 2nd Wednesday of every month, at 11 a.m. ET (45 mins). Click the button to register and select the date that works best for you.

Register Now