July 2023

Data Privacy Frontline Report

July 2023

Here are key highlights from July 2023 detailing global news and regulatory updates.

US & Canada

  • US Federal Trade Commission (FTC) provides key takeaways from recent cases, including those involving BetterHelp, GoodRx, Premom, and Vitagene
  • US FTC identifies algorithm disgorgement—or model deletion—as a significant part of the agency’s AI enforcement strategy

EMEA

  • EU and UK data authorities are cautiously positive about the potential of synthetic data while recognizing potential privacy risks
  • EU’s European Commission adopts the EU-US adequacy decision, but the new framework is already poised to face a legal challenge in the EU
  • EU’s European Data Protection Board (EDPB) issued its formal statement on the European Commission’s first review of its adequacy agreement with Japan, finding no changes in Japanese legislation running counter to the GDPR
  • EU’s European Medicines Agency (EMA) finalizes guidance on safeguarding personal protected data (PPD) and commercially confidential information (CCI) in clinical trial filings in the European Economic Area
  • Saudia Arabia’s government publishes draft guidelines on the transfer of personal data outside the Kingdom of Saudi Arabia (in Arabic)
  • UK privacy campaigners call for EU data adequacy to be revoked if the UK government’s upcoming data bill passes

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APAC

  • Indonesia’s Communications and Informatics Ministry to draft a regulation for an independent institution to report on data leaks and report results directly to the President
  • Sri Lanka’s Data Protection Authority comes into operation, an independent body engaging with a range of sectoral regulators
  • Thailand’s Office of the Personal Data Protection Commission announced a public hearing to formalize the responsibilities of data controllers and processors under the Personal Data Protection Act

LATAM

  • Argentina’s national executive branch presents the Personal Data Protection Bill to Congress (in Spanish)
  • Guatemala’s draft data protection law receives a favorable opinion from the Transparency and Probity Commission and now returns to Congress for debate

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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