January 2023

Data Privacy Frontline Report

January 2023

Here are key highlights from January 2023 detailing global news and regulatory updates.

Global

  • ISO standard on Privacy by Design to be adopted in February 2023 as ISO 31700
  • United Nations PET Lab: Results, analysis and key takeaways from their first hackathon on privacy-enhancing technologies

US & Canada

  • California and Virginia have comprehensive privacy laws that took effect on January 1
  • Canada’s provincial and federal private-sector law reform for 2023, explained by Chantal Bernier from Dentons LLP
  • Canada’s draft Consumer Privacy Protection Act: Feedback from industry participants
  • Colorado Attorney General’s office publishes revised draft Colorado Privacy Act rules, with a public rulemaking hearing to be held on February 1, 2023
  • New York state privacy bill introduced already this year, along with comprehensive privacy bills in Kentucky, Tennessee and Oklahoma
  • US NIST publishes AI Risk Management Framework 1.0, making a big contribution to the development of a national AI strategy
  • US and EU sign an administrative agreement on AI and computing to address global challenges in healthcare and other areas (also in EMEA)

EMEA

  • EU NIS2 and CER cybersecurity directives have entered into force
  • EU’s legislative priorities for 2023 outlined, including the Data Act and the Digital Markets Act
  • EU GDPR may need a new exception to prevent AI discrimination, according to this IAPP article
  • EU and US sign an administrative agreement on AI and computing to address global challenges in healthcare and other areas (also in US & Canada)
  • France’s data protection agency CNIL to support an interdisciplinary project on the protection of personal data
  • French social security organization exposes data on over 10,000 payment recipients, failing to anonymize the data adequately
  • Irish Data Protection Commission (DPC) fines Meta 390M euros over legal basis for personalized ads, with the decision highlighting a divide between European regulators and raising uncertainty around GDPR compliance
  • Qatar’s role in protecting personal data privacy discussed
  • Slovenia’s new Personal Data Protection Act (ZVOP-2) enters into force

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APAC

  • Australia to consider right to be forgotten and other European-style privacy reforms to the Privacy Act

LATAM

  • Brazil’s senate committee publishes AI report and draft AI law, to serve as the starting point for senate deliberation

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

  • Unleashing the full value of retained data so they can be put to work safely and responsibly in line with privacy regulation?
  • Defining and implementing effective archival and disposal processes for personal data?

OUR SOLUTION

Value Retention

  • Retain the business value in your data through anonymization.
  • Ensure compliance in your retention & destruction strategy.
  • Maximize the reuse of information by removing what is personal.

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Read the full story >

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

  • Optimizing the use / analysis of data to achieve your organization’s intended outcomes with measured success?

OUR SOLUTION

Unbiased Results

  • Reduce / minimize risk of bias in your data for machine learning.
  • Ensure transparency, fairness, and AI ethics / compliance.
  • Ensure data ethics & compliance in your data models and results.

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Read the full story >

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

  • Ensuring the right people have access to the right data at the right times?

OUR SOLUTION

Usable and Reusable Data

  • Enable internal access and / or external sharing of data for primary and / or secondary uses.
  • Ensure data are useful and reusable in alignment with FAIR principles.
  • Ensure data have the right level of privacy protection for the use.

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

See the full story >

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

  • Maintaining / processing data securely and efficiently to promote data enablement with auditable proof of compliance?

OUR SOLUTION

Security / compliance efficiency

  • Creating synthetic versions of data to be used for innovation / AIML.
  • Applying data minimization principles to reduce your risk exposure.
  • Transforming your data for secondary uses and access.

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Visit ASCOPubs.org to read the full story >

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

  • Ensuring the acquisition / collection of the right data under the appropriate consent / contracts to maintain corporate integrity?

OUR SOLUTIONS

Consent / Contracting strategy

  • Developing a consent / contractual framework for collecting / sourcing.
  • Creating a comms strategy for internal / external stakeholders.
  • Ingesting and transforming data safely to earn trust.

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Read the full story >

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

  • Defining a clear data strategy to achieve desired outcomes?
  • Getting it right at the start to avoid costly privacy missteps later?

OUR SOLUTION

Build privacy in by design

  • Building privacy into your data plan / platform / pipeline upfront.
  • Establishing a trusted data strategy (ethics, compliance, privacy).

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

Visit Nuance.com to read the full story >

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