April 2024

Data Privacy Frontline Report

April 2024

Here are key highlights from April 2024 detailing global news and regulatory updates.

US & Canada

  • California Privacy Protection Agency (CPPA) issues first enforcement advisory, focused on data minimization obligations
  • Colorado produces a new law extending privacy measures to brainwave data and covering neurotechnologies that monitor brain activity
  • Connecticut Senate passes AI Bill, aimed to establish Connecticut as a leader in the national movement to regulate and standardize the development and use of AI
  • Nebraska Legislature gives final approval to a comprehensive privacy statute that mirrors Texas’ law and, if enacted, will take effect on January 1, 2025
  • US congress members release the American Privacy Rights Act (APRA), a draft bi-partisan federal privacy bill which includes requirements on data minimization, as well as consumer rights to opt out of targeted advertising, and view, correct, export, or delete their data
  • US Consumer Financial Protection Bureau (CFPB) and the Federal Trade Commission (FTC) seek to hold consumer reporting companies accountable for error correction
  • US FTC finalizes changes to the Health Breach Notification Rule, clarifying its applicability to health apps and expanding the information covered entities must provide consumers in the event of a breach
  • US FTC publishes a blog post addressing the ways to systematically address security vulnerabilities
  • US Federal Communications Commission (FCC) fines wireless carriers $200 million for illegally sharing access to customer location data without consent
  • US and UK AI Safety Institutes sign a memorandum of understanding, laying out plans to build a common approach to AI safety testing and to share capabilities for tackling risks (also in EMEA)

EMEA

  • Denmark’s data protection authority updates guidance on conducting data transfers to third countries, responding to new information from the European Data Protection Board and European Commission (guidance in Danish)
  • EU European Commission releases questions and answers on the European Health Data Space, including a description of its benefits
  • EU European Parliament adopts new GDPR procedural rules to improve handling of cross-border cases and to speed up procedures
  • France’s National Commission on Informatics and Liberty (CNIL) releases its first recommendations on the development of artificial intelligence systems and will supplement these recommendations in coming months (in French)
  • France’s CNIL comments on the economic impact of GDPR after five years, finding returns on investment from GDPR in a number of areas
  • Germany’s Health Data Act, which went into effect on March 26, aims to advance health research by granting pharmaceutical companies access to patients’ health data
  • UK Information Commissioner’s Office (ICO) publishes guidance for health and social care organizations to help them improve transparency and build public trust
  • UK and US AI Safety Institutes sign a memorandum of understanding, laying out plans to build a common approach to AI safety testing and to share capabilities for tackling risks (also in US & Canada)

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APAC

  • China’s new cross-border transfer issues discussed, including recent relaxations to the law and their impact on businesses
  • India’s Ministry of Electronics and Information Technology (MeitY) convenes a working group to develop guidelines for data anonymization standards, with the guidelines currently under review
  • South Korea’s Personal Information Protection Commission (PIPC) releases a guide to help overseas businesses comply with the Personal Information Protection Act (guidance in Korean)

LATAM

  • Brazil’s National Data Protection Authority (ANPD) approves a regulation requiring controllers to inform the ANPD and data subjects about significant security incidents (in Portuguese)

Archiving / Destroying

Are you unleashing the full value of data you retain?

Your Challenges

Do you need help...

OUR SOLUTION

Value Retention

Client Success

Client: Comcast

Situation: California’s Consumer Privacy Act inspired Comcast to evolve the way in which they protect the privacy of customers who consent to share personal information with them.

Evaluating

Are you achieving intended outcomes from data?

Your Challenge

Do you need help...

OUR SOLUTION

Unbiased Results

Client Success

Client: Integrate.ai

Situation: Integrate.ai’s AI-powered tech helps clients improve their online experience by sharing signals about website visitor intent. They wanted to ensure privacy remained fully protected within the machine learning / AI context that produces these signals.

Accessing

Do the right people have the right data?

Your Challenges

Do you need help...

OUR SOLUTION

Usable and Reusable Data

Client Success

Client: Novartis

Situation: Novartis’ digital transformation in drug R&D drives their need to maximize value from vast stores of clinical study data for critical internal research enabled by their data42 platform.

 

Maintaining

Are you empowering people to safely leverage trusted data?

Your Challenges

Do you need help...

OUR SOLUTION

Security / compliance efficiency

CLIENT SUCCESS

Client: ASCO’s CancerLinQ

Situation: CancerLinQ™, a subsidiary of American Society of Clinical Oncology, is a rapid learning healthcare system that helps oncologists aggregate and analyze data on cancer patients to improve care. To achieve this goal, they must de-identify patient data provided by subscribing practices across the U.S.

 

Acquiring / Collecting

Are you acquiring the right data? Do you have appropriate consent?

Your Challenge

Do you need help...

OUR SOLUTIONS

Consent / Contracting strategy

Client Success

Client: IQVIA

Situation: Needed to ensure the primary market research process was fully compliant with internal policies and regulations such as GDPR. 

 

Planning

Are You Effectively Planning for Success?

Your Challenges

Do you need help...

OUR SOLUTION

Build privacy in by design

Client Success

Client: Nuance

Situation: Needed to enable AI-driven product innovation with a defensible governance program for the safe and responsible use
of voice-to-text data under Shrems II.

 

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