Can you Achieve Trustworthiness Through Transparency?

Can you Achieve Trustworthiness Through Transparency?

Data Sharing and Data Anonymization: the Vivli-Privacy Analytics Partnership


About this webinar

April 15, 2020

In this presentation Vivli and Privacy Analytics discuss on how both organizations help data contributors share their data securely while protecting patients’ privacy. The webinar explores the different approaches to anonymization and the value of a risk-based, quantitative anonymization approach. Learn the importance of building communities that advance scientific research and creating trustworthiness through transparency.

Key topics include:

  • Overview of the regulatory landscape
  • Importance of data sharing and enabling secondary uses of data
  • The fundamentals of anonymization


Niamh McGuinness is a technical lead with Privacy Analytics’ Clinical Trial Transparency (CTT) business unit. Her team works with a variety of clinical trial sponsors that have turned to us to meet the stringent requirements of regulations such as EMA Policy 0070 and Health Canada Public Release of Clinical Information (PRCI). Drawing on her academic research background, Niamh has helped develop Privacy Analytics’ CTT methodology and our proprietary toolsets.

Niamh McGuinness

Senior CTT Analyst

Rebecca Li, PhD, is the Executive Director of Vivli and on faculty at the Center for Bioethics at the Harvard Medical School. Previous to her current role she was the Executive Director of the MRCT Center of Brigham and Women’s Hospital and Harvard for over 5 years and remains a Senior Advisor at the Center. She has over 25 years of experience spanning the entire drug development process with experience in Biotech, Pharma and CRO environments. She completed a Fellowship in 2013 in the Division of Medical Ethics at Harvard Medical School. She earned her PhD in Chemical and Biomolecular Engineering from Johns Hopkins University.

Rebecca Li, Ph. D.

Executive Director of Vivli


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