De-identification 101

Protecting Health Information (PHI): A Primer

The growth in the use of electronic medical records, electronic insurance claims processing and other hospital software systems has led to a rise in the collection and storage of personal health information. Beyond the provision of patient care, this information can be invaluable in driving innovative research and providing new insights to address challenging healthcare problems.

De-identification allows for the sharing of personal health information by protecting individual privacy. By de-identifying a dataset, the chance that a person can be identified from their data is drastically reduced. The ability to comply with HIPAA standards and other legal requirements when leveraging health data for secondary purposes is possible. The De-identification 101 primer is designed to give you a broad overview of what de-identification is, what legal requirements are, and how it can impact healthcare. Learn to manage risks, stay compliant, and protect the privacy of individuals.

This primer is part one of our De-identification series. Make sure to read De-identification 201, 301 and 401 to get the full picture.

“Without this technology a lot of research we want to do would grind to a halt.”
-Dr. Mark Walker, Scientific Director and Co-director of the BORN Registry


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