Webcast: Increase Access to A Global Good

Increase Access to A Global Good: An Executive Conversation with Vivli’s Executive Director Dr. Rebecca Li and Privacy Analytics’ founder Dr. Khaled El Emam

What is Vivli? Why is it a breakthrough for clinical trials data sharing? In this Executive Conversation, Our Special Guest, Vivli Executive Director Dr. Rebecca Li; and Dr. Khaled El Emam, Founder and Chief Executive Officer, Privacy Analytics, discuss the Vivli-Privacy Analytics partnership and its significance for the global health research community.

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“Increase Access to A Global Good”

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Acting as a neutral broker between data contributor, data user and the wider data sharing community, Vivli’s stated objective is to harmonize governance, policy and processes to facilitate data sharing with an independent data repository, in-depth search engine and cloud-based, secure analytics.

“We occupy a unique position as an umbrella organization that brings together a variety of entities,” Dr. Li observes. Vivli’s members and partners are an esteemed list: The Bill and Melinda Gates Foundation, The Leona M. and Harry B. Helmsley Trust, Harvard University, Duke University, Johns Hopkins University, Pfizer, GSK, Takeda, Wellcome, and Biogen are among those who help make Vivli happen.

The Vivli platform was designed and built to ensure the security of the anonymized clinical trial participant data that it hosts. Therefore, enlisting a trusted partner to help data contributors anonymize their data, before sharing it with Vivli, was critical. Privacy Analytics, with its extensive experience in de-identifying highly sensitive personal health information datasets covering a wide bandwidth of sizes and types, was selected to apply its expertise.

Dr. Li and Dr. El Emam will provide insights into how Vivli works, who it serves, how the partnership came to be, and what they see in the future for Vivli as a global, neutral platform for clinical trials data sharing.

They will also offer observations gathered from their respective presentations at Privacy Analytics’ Executive Roundtable adjacent to the DIA Global Clinical Trials Transparency Conference September 2018 in London, England.

Visit Vivli on the web: www.vivli.org


You may also read more about the Vivli-Privacy Analytics partnership, and Dr. Rebecca Li, here:

“Increase Access to A Global Good” – interview with Vivli’s Dr. Rebecca Li

About our presenters:

Rebecca Li, PhD, is the Executive Director of Vivli. Previous to her current role, she was the Executive Director of the MRCT Center of Brigham and Women’s Hospital and Harvard for over 5 years and remains a Senior Advisor at the Center.  The MRCT Center is a neutral convening organization that works to define actionable policy solutions for the clinical trial enterprise. She has over 20 years of experience spanning the entire drug development process with experience in Biotech, Pharma and CRO environments. The Center was chartered to improve the integrity, safety and rigor of global clinical trials. She currently is an Instructor in Medicine in the Division of Global Health Equity, Department of Medicine in the Harvard Medical School and teaches Research Ethics at the Center for Bioethics. She completed a Fellowship in 2013 in the Division of Medical Ethics at Harvard Medical School.  Prior to joining Harvard, Dr. Li served as the VP of Clinical Research at the New England Research Institutes for 6 years. She was also previously employed at Wyeth Research as the Associate Director in Translational Clinical Research. She earned her PhD in Chemical and Biomolecular Engineering from Johns Hopkins University.

Dr. Khaled El Emam is the founder of Privacy Analytics Inc. As an entrepreneur, Khaled helped found five companies involved with data management and data analytics. He has worked in technical and management positions in academic and business settings in England, Scotland and Japan.

Khaled is also a senior scientist at the Children’s Hospital of Eastern Ontario (CHEO) Research Institute and Director of the multi-disciplinary Electronic Health Information Laboratory (EHIL) team, conducting academic research on de-identification and re-identification risk. He is a world-renowned expert in statistical de-identification and re-identification risk measurement. He is one of only a handful of individual experts in North America qualified to anonymize Protected Health Information under the HIPAA Privacy Rule.

In 2003 and 2004, Khaled was ranked as the top systems and software engineering scholar worldwide by the Journal of Systems and Software based on his research on measurement and quality evaluation and improvement.

Previously, Khaled was a Senior Research Officer at the National Research Council of Canada. He also served as the head of the Quantitative Methods Group at the Fraunhofer Institute in Kaiserslautern, Germany.

Khaled was one of the first Privacy by Design Ambassadors recognized by the Ontario Information and Privacy Commissioner. He previously held the Canada Research Chair in Electronic Health Information at the University of Ottawa and is an Associate Professor in the Faculty of Medicine at the University. He has a PhD from the Department of Electrical and Electronics Engineering, King’s College, at the University of London, England.

Dr. El Emam has authored a number of foundational works on data privacy and personal health information, including:

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